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History

Many children have complex spine and/or chest wall deformity that impact their ability to breathe, sit, and walk. Established in 2005 and 2008 respectively, the Children's Spine Foundation and the Growing Spine Foundation were created with the goal of supporting research and education related to severe spinal deformity in the growing child.  Since their inception, the Foundations have worked tirelessly in their mission of improving the quality of life for patients and their families through two Study Groups.  In 2019, two decades after the creation of the Foundations, the membership and infrastructure of both study groups were merged to form the Pediatric Spine Study Group (PSSG).   


PSSG is comprised of a team of researchers and clinicians associated with major medical institutions around the world working together to improve care for these children.  Data is gathered prospectively at each institution and is combined to produce powerful research.  Progress is being made through these efforts.  Today our research has improved the care of so many children, making their future brighter than it has been in the past. However, there remain many unanswered questions. We are dedicated to continuing this work.